Quality of Life in Survivors of Childhood Brain Tumour and the association of children's diseases on quality of their parents life
Menée en Pologne auprès de 46 patients ayant survécu à une tumeur cérébrale (âge : 4,5 à 29 ans), de 104 témoins et de leurs parents (150 parents), cette étude analyse la qualité de vie des patients ayant survécu à une tumeur cérébrale, puis analyse l'impact de la maladie sur la qualité de vie des parents
Objective : Evaluation of children's quality of life (QoL) after finished brain tumour treatment and the association of children's diseases on quality of their parents life. Methods : The study group was consisted of 46 children after brain tumour treatment (aged 4,5 – 29 years). The control group was composed of 104 students of primary, secondary and high schools. 150 (104+46) parents were included in the study. Standardized QoL questionnaires (PEDsQL‐4.0, WHOQOL‐BREF) were used. Survivors’ QoL was assessed from patients’ and their parents’ point of view, also the association of children's diseases on quality of their parents life was estimated. Results : QoL of children after brain tumour treatment was lower than in the control group according to the children (p<.001) and their parents (p<.001). The survivors worst rated their ability to social functioning (p<.001) and physical functioning (p<.001) in comparison with healthy children. According to their parents the functioning of children in all zones was worse than in the control group, mostly in social (p<.001) and physical sphere (p<.001), too. QoL of children with low‐grade tumour was comparable to QoL of children with high‐grade tumour). QoL of survivors’ caregivers in study was higher than QoL of parents of control groups (p=.023). Conclusions : The quality of patients life after brain tumour treatment is lower in comparison with healthy children. The assessment of QoL of children after brain tumour treatment should be an inherent element of health monitoring.
Psycho-Oncology 2019