Specialty Palliative Care for Adolescents and Young Adults With Cancer—Developmental Considerations and an Agenda for Future Research
Menée au Canada à partir de données portant sur 5 435 adolescents et jeunes adultes atteints d'un cancer diagnostiqué entre 2010 et 2018 (âge : 15-29 ans ; durée médiane de suivi : 5,1 ans), cette étude de cohorte analyse l'association entre la sévérité de leurs symptômes auto-déclarés et l'utilisation de soins palliatifs
Adolescents and young adults (AYA) with cancer are a group for whom the benefits of specialist palliative care may be especially profound. Freyer expressed that for the dying adolescent, “adolescence is a paradox of emerging capabilities, and diminishing possibilities.” For AYA, change is the one constant. In the face of potentially incurable disease, amidst all this change, palliative care can minimize AYA’s suffering and maximize quality of life. International recommendations support the integration of palliative care for young people with cancer across the care trajectory. Yet, the extent to which this occurs in practice is unclear. There remains inequity—and unacceptable variability—around which subgroups of AYA may ever meet palliative care and how timely this may be.
JAMA Network Open , commentaire en libre accès, 2022